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aHUSとは「補体制御異常
によるaHUS」をさします。

患者さんとご家族の皆さま-ホーム
aHUSとは？
aHUSの原因は？
aHUSの診断方法は？
aHUSの合併症は？
aHUSの治療法は？
患者さんとご家族向け資材

Discuss aHUS with your Doctor

Here you will find guides to help you and your doctor work together on managing aHUS, whether you're new to the disease or currently being treated for aHUS by a nephrologist, hematologist, or your primary care physician.

It's important to have a clear conversation that relates to where you are with aHUS. Answer the following questions to create your own personal guide for talking meaningfully with your primary care physician, ER team or specialist.

aHUS Customized Discussion Guide Questions

Please choose just one answer for each question

1. What is your role in managing aHUS?

Adult Patient

Caregiver for an adult

Caregiver for a child

2. Where are you/the person you care for with treatment?

Not yet diagnosed

Newly diagnosed with aHUS

I recently received my first treatment for aHUS

I'm undergoing treatment for aHUS

I was on treatment for aHUS, but I am no longer

I have been treated for a similar disease

3. What type of physician are you seeing?

I am seeing/plan to see my Primary Care Provider/Internist

I am seeing/plan to see a Kidney Specialist (Nephrologist)

I am seeing/plan to see a Blood Specialist (Hematologist)

I am seeing/plan to see a Pediatric Nephrologist

I saw an physician in the ER

Other type of physician/I don't know.

4. How concerned are you about aHUS?

Extremely

Very

Somewhat

Not at all

5. How well do you understand aHUS?

Extremely well

Very well

Somewhat well

Not at all

6. How confident are you about managing aHUS?

Extremely

Very

Somewhat

Not at all

Please make sure all fields have a selection

Have you already been diagnosed with aHUS? Download this helpful Clinical Assessment Tool to help you keep track of your treatment and doctor visits.

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This site is intended for Japan audiences only.

© 1999 Alexion Pharma

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